Clinical Trial

The Duchenne Registry

Recruiting
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Summary
The Duchenne Registry is an online, patient-report registry for individuals with Duchenne and Becker muscular dystrophy and carrier females. The purpose of the Registry is to connect Duchenne and Becker patients with actively recruiting clinical trials and research studies, and to educate patients and families about Duchenne and Becker care and research. At the same time, The Duchenne Registry is a valuable resource for clinicians and researchers in academia and industry, allowing access to de-identified datasets provided by patients and their families-information that is vital to advances in the care and treatment of Duchenne. The Duchenne Registry is a member of the TREAT-NMD Neuromuscular Network.
Protocol Amendment History 10 amendments
This ClinicalTrials.gov record has been amended 10 times since 2014-02-20; most recent amendment 2026-05-05.
Trial Details
NCT Number NCT02069756
Lead Sponsor The Duchenne Registry
Collaborators: Parent Project Muscular Dystrophy
Conditions Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Dystrophinopathy, Dystrophinopathy Symptomatic Female Carrier, Dystrophinopathy Female Carrier
Enrollment 10,000 participants
Start Date 2007-10
Primary Completion 2027-10 (estimated)
Study Completion 2047-10 (estimated)
Updated on ClinicalTrials.gov 2026-05-08