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Institutional Registry of Haemorrhagic Hereditary Telangiectasia

StatusRecruiting
PhaseNot specified
Started
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Record History

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  1. Site contact updatedv5
  2. Enrollment target: 250 to 590v4 Show 4 more changesShow less
    • Primary completion date changed from estimate of Jun 2017 to May 19, 2025
    • Study completion date: Dec 2017 to Dec 2035
    • Start date: Jun 2012 to Jan 1, 2010
    • Study description expanded, about 1 word
  3. Re-verified, no change to tracked fieldsv3
  4. Study completion date: Dec 2017
    • Site contact updated
    v2
  5. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival. This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.
Trial Details
NCT Number NCT01761981
Lead Sponsor Hospital Italiano de Buenos Aires
Conditions
(from sponsor)		 Haemorrhagic Hereditary Telangiectasia
Related terms Telangiectasia, Hereditary Hemorrhagic
Enrollment 590 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov