| NCT Number | NCT01425944 |
| Lead Sponsor | Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
Collaborators: National Institutes of Health (NIH), University of California, San Francisco, National Institute of Neurological Disorders and Stroke (NINDS), Duke University, Children's Hospital of Michigan, Baylor College of Medicine, Wills Eye, Nationwide Children's Hospital, New York University, Children's Hospital Medical Center, Cincinnati |
| Conditions | Sturge-Weber Syndrome |
| Enrollment | 600 participants |
| Start Date | 2010-09 |
| Primary Completion | 2025-12 (estimated) |
| Study Completion | 2027-02-09 (estimated) |
| Updated on ClinicalTrials.gov | 2026-03-02 |