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Diamond Blackfan Anemia Registry (DBAR)

Study acronym: DBAR
StatusRecruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Primary and study completion dates: Apr 2026 to Apr 2030v18
  2. Lead sponsor: Feinstein Institute for Medical Research to Northwell Health Collaborators shortened, about 5 wordsv17 Show all 2 changesShow less
    • Collaborators shortened, about 5 words

    See this version in full on ClinicalTrials.gov ↗

  3. Re-verified, no change to tracked fieldsv16
  4. Lead sponsor: Northwell Health to Feinstein Institute for Medical Research Collaborator revised · Publications: 22 to 27v15 Show all 3 changesShow less
    • Collaborator revised
    • Publications: 22 to 27

    See this version in full on ClinicalTrials.gov ↗

  5. Primary and study completion dates: Apr 2021 to Apr 2026 Enrollment target: 850 to 900v14 Show all 2 changesShow less
    • Enrollment target: 850 to 900
Show 12 earlier versionsHide 12 earlier versions
  1. Re-verified, no change to tracked fieldsv13
  2. Primary and study completion dates: Apr 2019 to Apr 2021 Publications: 17 to 22v12 Show all 2 changesShow less
    • Publications: 17 to 22

    See this version in full on ClinicalTrials.gov ↗

  3. Eligibility criteria expanded, about 35 wordsv11 Show moreShow less

    See this version in full on ClinicalTrials.gov ↗

  4. Completion date: Apr 2019 Site contact updatedv10 Show all 2 changesShow less
    • Site contact updated
  5. 2 versions Re-verified since Jun 15, 2016, no change to tracked fieldsv8-v9
  6. Primary completion date: Dec 2015 to Apr 2019v7
  7. Primary completion date: Dec 2014 to Dec 2015 Enrollment target: 700 to 850 · Publications: 16 to 17v6 Show all 3 changesShow less
    • Enrollment target: 700 to 850
    • Publications: 16 to 17

    See this version in full on ClinicalTrials.gov ↗

  8. Re-verified, no change to tracked fieldsv5
  9. Lead sponsor: National Heart, Lung, and Blood Institute (NHLBI) to Northwell Health Primary completion date: Dec 2014 · Completion date: Dec 2014 to not stated · Study site revised · 2 morev4 Show all 6 changesShow less
    • Primary completion date: Dec 2014
    • Completion date: Dec 2014 to not stated
    • Study site revised
    • Collaborators expanded, about 7 words
    • Publications: 12 to 16

    See this version in full on ClinicalTrials.gov ↗

  10. Completion date: Jul 2009 to Dec 2014 Study description revised · Study site revised · Publications: 8 to 12v3 Show all 4 changesShow less
    • Study description revised
    • Study site revised
    • Publications: 8 to 12

    See this version in full on ClinicalTrials.gov ↗

  11. Trial status: Active, Not Recruiting to Recruiting Enrollment target: 700 · Study sites: 0 to 1 · Publications: 2 to 8 · 1 morev2 Show all 5 changesShow less
    • Enrollment target: 700
    • Study sites: 0 to 1
    • Publications: 2 to 8
    • Eligibility criteria shortened, about 3 words

    See this version in full on ClinicalTrials.gov ↗

  1. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).
Trial Details
NCT Number NCT00106015
Lead Sponsor Northwell Health
Conditions Anemia, Blood Disease
Enrollment 900 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov