Diamond Blackfan Anemia Registry (DBAR)

Study acronym: DBAR
StatusRecruiting
PhaseNot specified
Started

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Record History

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  1. Primary and study completion dates: Apr 2026 to Apr 2030v18
  2. Lead sponsor: Feinstein Institute for Medical Research to Northwell Health
    • Collaborators shortened, about 5 words
    v17
  3. Re-verified, no change to tracked fieldsv16
  4. Lead sponsor: Northwell Health to Feinstein Institute for Medical Research
    • Collaborator revised
    • Publications: 22 to 27
    v15
  5. Primary and study completion dates: Apr 2021 to Apr 2026
    • Enrollment target: 850 to 900
    v14
Show 12 earlier versionsHide 12 earlier versions
  1. Re-verified, no change to tracked fieldsv13
  2. Primary and study completion dates: Apr 2019 to Apr 2021
    • Publications: 17 to 22
    v12
  3. Eligibility criteria expanded, about 35 wordsv11
  4. Study completion date: Apr 2019
    • Site contact updated
    v10
  5. 2 versions Re-verified since Jun 15, 2016, no change to tracked fieldsv8-v9
  6. Primary completion date: Dec 2015 to Apr 2019v7
  7. Primary completion date: Dec 2014 to Dec 2015
    • Enrollment target: 700 to 850
    • Publications: 16 to 17
    v6
  8. Re-verified, no change to tracked fieldsv5
  9. Lead sponsor: National Heart, Lung, and Blood Institute (NHLBI) to Northwell Healthv4 Show 5 more changesShow less
    • Primary completion date: Dec 2014
    • Study completion date: Dec 2014 to not stated
    • Study site revised
    • Collaborators expanded, about 7 words
    • Publications: 12 to 16
  10. Study completion date: Jul 2009 to Dec 2014
    • Study description revised
    • Study site revised
    • Publications: 8 to 12
    v3
  11. Trial status: Active, Not Recruiting to Recruitingv2 Show 4 more changesShow less
    • Enrollment target: 700
    • Study sites: 0 to 1
    • Publications: 2 to 8
    • Eligibility criteria shortened, about 3 words
  1. Study First Submitted
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).
Trial Details
NCT Number NCT00106015
Lead Sponsor Northwell Health
Conditions
(from sponsor)		 Anemia, Blood Disease
Related terms Anemia, Hematologic Diseases
Enrollment 900 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov